Tuesday, February 07, 2017

CHD Awareness Week 2017

There is an incredible amount of awareness and education surrounding adult heart disease, but very little about the number one birth defect or leading cause for birth-defect related deaths.

Did you know:
  • Congenital Heart Defects (CHDs) affects approximately 1.8 million families in the United States
  • CHDs are the most common birth defect and the leading cause of birth-defect related deaths worldwide
  • Nearly twice as many children die from CHDs as from all childhood cancers combined, yet research for cancer receives five times the funding
  • There are currently 35 distinct CHDs recognized
  • There is no known cause for CHDs and there is no cure. Only treatment, such as medicines, numerous surgeries and heart transplants.
  • Each year an estimated 1 in 100 babies are born in the United States with a congenital heart defect
  • 1 in 10 of those are born with a fatal defect
My daughter, Allison Grace, was one of these statistics. Allison was born on April 29, 2002, with several complex heart defects. Prior to her diagnosis in utero, I could not even tell you what CHD stood for. Allison spent 32 days in the NICU before we were able to bring her home to meet her brother and sister. Our next few months were filled with doctor visits, echocardiograms, medicines, and a heart cauterization. 

On August 9, 2002, Matt and I kissed Allison and handed her over to the nurse for what was to be her first of several open heart surgeries. This was the last time we held our daughter alive. On August 13, at only 101 days old, Allison earned her angel wings.

We never got to see our daughter take her first steps or say her first words. We never had her wrap her arms around us and say "I love you mommy and daddy." There is no "first day of school" photo. She will never graduate high school or go to college. Matt will never walk her down the aisle and give her to the man who has promised to love her forever. We were blessed to have had 101 days with our daughter. Many CHD parents are not as fortunate as us. 

February 7 - 14 is "Congenital Heart Defect Awareness Week". Raising national awareness about Congenital Heart Defects is important on so many levels—it will provide hope for families of CHD survivors and comfort to those whose loved ones have lost their battles; it will inform the general public about the symptoms of CHDs and possibly save lives; and it will affirm the need for researchers and medical professionals to continue their work to improve the outlook for CHD patients. 

Here are a few ways you can help bring awareness to CHDs this week.
  • If you are looking to give to a charity, think about donating to one that supports CHD research, such as the Children's Heart Foundation.
  • If you give to the American Heart Association, put "Zachary Brooks Foundation" in the memo designating that your funds will go to a foundation set up specifically for CHD heart awareness and research.
  • Wear red on February 14 to remember those who are affected by CHDs.
  • And if you have children, hug them a little tighter and thank God for the miracle and wonderful gift you have been given.


Santa Clause said...

Thanks for the splendid article. heredity hair loss is also an other syptons now a days for hair loss in childre.
i will oftent visit your blog now and then. thanks again

Unknown said...

» Obat kuat pria
» Obat Sex Pria
» kosmetik herbal
» obat kuat herbal
» Obat Pembesar Penis
» Obat Ejakulasi Dini
» Obat Lemah Syahwat
» obat impotent
» Alat Bantu Sex
» pembesar penis
» Alat Pembesar Penis
» Produk Import

a片 said...


CS:GO Bets said...

Thank you for spreading awareness about CHDs, this is a very important issue and more people should get educated on this...

網路校園美女寫真 said...


Kendrick Smith said...

paybackdollar have more than 5000 stores of the world .you can go on pay back and get easily deals and discount
paybackdollar is giving upto 75%off on many stores.

maydavid said...

thanks for the great information. it has help me alot.
deals and discount

maydavid said...

thanks for the great information. it has help me lots of time. ..
deals and discount

maydavid said...

this type of post is so good .please visit my website for best coupons.
coupon code

dealmecoupon said...

Very Nice Post, I learned a lot through it. Thanks for posting.

Further Information

dealmecoupon said...

freshly promo code

Thanks for sharing this amazing article, it is very informative post good work keep it up.

BuyCustomLogo.com said...

Thankyou for sharing this article! There are no of diseases that are caused because of heridity..Hope everyone stay well.

Buy Custom Logo

CuteClothsForTeens said...

After looking at a few of the articles on your website, I seriously appreciate your technique. of blogging.
I added it to my bookmark website list and will be checking
back soon. Take a look at my website too and tell me your opinion.

15% Off + Free Shipping
CuteClothesForTeens is a one stop shop for all your fashion needs where Quality is our priority. We are here to design Your Catalog.

Kate Williamson said...
This comment has been removed by the author.
Couponrax said...

This post is amazing. Coupon Codes

harisalee@64gmail.com said...

That is really a top notch post, Keep up the great work!
custom Logo

Anonymous said...

Keep up the good work! Check out latest deals and offers at RetailEscaper

harisalee@64gmail.com said...

It is a very innovative and informative post,
Thanks for sharing with us,
We are again come on your website, Thanks and good day.
custom logo

couponrax said...


Couponrax5952 said...

CouponRax is the best source to find coupon codes, promo codes, deals & discount offers and to help people save money on their online purchases.

harisalee@64gmail.com said...

Oh wow! Helpful post..
Thanks for sharing with us,
We are again come on your website,
Thanks and good day,
If you need any logo then,
Please visit our site,

couponrax0987 said...

CouponRax is the best source to find coupon codes, promo codes, deals & discount offers and to help people save money on their online purchases. promo codes.

Coupondid said...

Try other Betabrand Coupon Code if one is not accepted or you can also use pre-activated Betabrand sale without a code using the CLICK TO REDEEM button.

Kennedy Moore said...

Betabrand, which was launched by Chris Lindland in 2010, specializes in clothes that provide a whole new take on business casual. Betabrand Coupon Code

yanmaneee said...

jordan 4
golden goose
golden goose sneakers
supreme new york
lebron shoes
moncler jacket
supreme clothing
hermes birkin

Ashley said...

The professtional essay writer are having more knowledege about the writing papers. The professional essay writer are providing the best essay writing services papers to the students. The writeersity writing company had to providing the more writing papers for the professtionalist. The papers should be very quality and possible to acedemic success. WritePaper.Info Good luck!

Harry said...

We are providing professional Logo designs with 75% off
logo order online

Anonymous said...

Hello pretty people?
We are offering you world best service with very good discount buy a Platinum Logo Design with us get 7O% Off.

Haris said...

I have read so many articles but this is some different It's a very unique and wonderful blog!
Thank you for sharing with us.
Law Essay

Anonymous said...

Thank you for sharing it with us.
I am really happy to see this blog.
It is helpful for me.

Law Essay Writing Service UK

Haris said...

Amazing I truly love your blog.
It is very unique and very helpful.
Thank you very much for sharing it with us.

Nursing Assignment Help

Unknown said...

takipçi satın al
takipçi satın al
takipçi satın al

Vouchercabin said...

Thanks for sharing this amazing article !
voucher code

Anonymous said...

This is a superb and also a useful post, thanks for the share, if you are looking to law dissertation help Uk then visit our site and get up to 75% off.

Tomy Goldenson said...

Nice & Informative Blog ! We offer welcome to yorkie puppies nearme. Check it out!...
puppies for sale near me
yorkie puppies with home training
where to buy Yorkie
Yorkie Female Puppies for sale
Yorkie puppies ready for their forever homes

elvina roy said...

it was very amazing blog keep it up this was very amazing discount code and delivery much better experience visit at the cbx promo code

Anonymous said...

شركة تنظيف فلل
تنظيف فلل